| January |
Starting January 1–West Chester, PA
Registration for Dragonfly Forest will begin for 22q11 campers. Dragonfly Forest's goal is to provide an exhilarating, challenging, and nurturing camp experience through which children gain a greater sense of independence, self-esteem, and self-reliance. For more details go to:
http://www.dragonflyforest.org/campprogram/default.htm
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| February |
February 27-28–Gainesville, Florida
A two-day conference on behavior and learning in students with the 22q deletion will take place in Gainesville, FL on February 27-28, 2010. This popular conference has been held at sites around the country and is sponsored by Genetic Services at Elwyn, with support from the University of Florida and the Int’l 22q11.2 Deletion Syndrome Fdtn. Complete details and registration information are available at http://www.elwyngenetics.org/22qhome.htm
February 28th–World Rare Disease Day
The Global Genes Project is a grassroots effort with a simple goal: Increase awareness for the prevalence of rare diseases and help those affected by them. While each disease may be rare when considered by itself, together they negatively impact the lives of millions of children and adults. For more information go to:
http://www.globalgenesproject.org/index.php |
| March |
March 31, 2010–Dragonfly Forest Camp Application Deadline
There is a free week of camp for kids with 22q11 deletion from June 28th – July 2nd.
For more information go to:
http://www.facebook.com/l/11dff;www.dragonflyforest.org
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| April |
April 11 - 15, 2010
DOWN UNDER INSTITUTE–AUSTRALIA
NSW–See details at Resources By Region–Australia
April 14, 2010–Genetic Alliance Newborn Screening Survey Deadline
Genetic Alliance wants to know your perspective on a number of important issues in newborn screening. We crafted a short survey on a range of topics, including number of conditions and what conditions are screened for at birth to key policy and system challenges. The survey takes less than 15 minutes to complete, and your participation in this survey will inform the development of models to educate parents and create systems for informed decision-making in newborn screening.
To access the survey, simply click the link below. The survey will close April 14, 2010.
http://www.zoomerang.com/Survey/?p=WEB229ZDMPN6F2
April 19-20, 2010 Course Event
Brisbane - See details at Resources By Region–Australia
April 22-23, 2010 Course Event
NSW–See details at Resources By Region–Australia
April 27-28, 2010 Course Event
Melbourne–See details at Resources By Region–Australia
April 30-May 2–Florence, Texas
We would like to invite you to the first ever retreat for families affected by VCFS in Texas, scheduled for Friday April 30 (afternoon) through May 2, 2010 at Peaceable Kingdom Retreat near Florence, Texas. Please mark your calendars and plan to join us for a FUN weekend of informative sessions and parent support on topics of interest to families affected by VCFS. For more information, go to: http://www.vcfstexas.com/peacablekingdom.html |
| May |
May 3-4, 2010 Course Event
West Perth– See details at Resources By Region–Australia
May 17-19, 2010 MAP & PATH TRAINING
Lismore, NSW–See details at Resources By Region–Australia |
| June |
June 16-18, 2010 MAP & PATH TRAINING
Toronto, Ontario–See details at Resources By Region–Canada
June 28-July 2–West Chester, PA
Dragonfly Forest Camp welcomes 22q11 kids ages 7-14 for an exhilarating, challenging, and nurturing camp experience through which children gain a greater sense of independence, self-esteem, and self-reliance. Registration starts January 1, 2010. For more information go to:
http://www.dragonflyforest.org/campprogram/default.htm |
| July |
July 10-15, 2010 TORONTO SUMMER INCLUSION INSTITUTE
See details at Resources By Region–Canada
July 16, 17–The Woodlands, Texas
The First Annual Microboard Conference, the biggest little conference in Texas, will be an opportunity for parents, teachers, friends, families of individuals with disabilities and self-advocates to learn from international and national experts about such topics as:
- How to create a microboard
- How to create a nonprofit organization to support your family member or friend with a disability in the community of their choice
- How to create a provider microboard and use federal dollars more efficiently
- PATH (Planning Alternative Tomorrows with Hope), an innovative person-centered planning tool especially helpful for teachers and transition specialists
- Microenterprises for the entrepreneurial spirit
For more information contact: Jennifer Mathews at 1 (800) 252-9729 x 123 or jmathews@thearcofte.
July 15-18–Salt Lake City, Utah
Each year, the Velo-Cardio-Facial Syndrome Educational Foundation, Inc. sponsors an international scientific educational conference. This is the foremost meeting for those with an interest in VCFS/22q11.2 deletion syndrome. Faculty will includeTony Simon, Tony Ysunza, Bob Shprintzen, Bernice Morrow, Bronwyn Glaser, and others, with special guest speaker Dr. Dennis Ruscello, an expert in cleft palate speech. The program will also include a presentation by a panel of adults with VCFS. For more information and forms, go to:
http://www.vcfsef.org/about_foundation/conferences.html
For discount hotel rooms:
Sheraton Salt Lake City Hotel
July 29-31–Coventry, England
The largest parent group in the U.K., Max Appeal, hosts its 10th Annual Scientific/Family Conference. Catch up with the latest 22q11 research, attend workshops, and visit local attractions such as Warwick Castle and Stratford-Upon-Avon. For more information contact the conference organizer at:
sam@cfsevents.co.uk
http://www.22qdeletion.com/home.htm |
August |
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| September |
September 2, 2010–Raymond, NE
Mission 22q will be having a fundraiser at James Arthur Vineyards in Raymond, NE on September 2, 2010 from 6:00 to 8:00 p.m. There will be a BBQ Pork Dinner, James Arthur Vineyards Wine Tasting, Music, and a Silent Auction. Tickets are $35.00.
Please contact Mike and Anne Stalker or Seth and Teri Lutz at:
astalker@neb.rr.com
teri.lutz@yahoo.com
September 15-17, 2010 MAP & PATH TRAINING
Toronto, Ontario–See details at Resources By Region–Canada |
| October |
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| November |
November 2-4, 2010 MAP & PATH TRAINING
Toronto, Ontario–See details at Resources By Region–Canada
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| December |
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